Congressional Briefing – June 30, 2026
Congressional Briefing
June 30th, 3-4 PM
Rayburn, Room 2043
Save the date! The Healthcare Nutrition Council will host its next Congressional Briefing on Tuesday, June 30, 2026, building on the strong momentum from last year’s bipartisan briefing and the meetings held throughout this year. The program will highlight the key legislative bills HNC is working on advancing and growing co-sponsor support while also educating Members of Congress and staff on the foundational policy issues surrounding oral nutrition supplements (ONS), medical foods, and the importance of protecting patient access.
Patient Advocate Videos
Lillian Isabella (New York | PKU, Medical Foods)
Board member, National PKU Alliance
Lillian recently began her Master’s in Narrative Medicine at Columbia University. She shares how PKU management has shaped her life, education, and career path.
Kaylaa White (Virginia | Crohn’s Disease, ONS)
Diagnosed with ulcerative colitis in 2020 and later reclassified with Crohn’s disease in 2023, Kaylaa experienced rapid disease progression that required complete bowel rest and more than a month of total parenteral nutrition (TPN) through a PICC line. After hospitalization, she depended on medically necessary nutrition support for over a year while unable to maintain adequate oral intake. When her insurer stopped coverage and her supplier left Virginia, she encountered significant barriers to accessing the products she needed—often paying out of pocket and traveling long distances for limited availability. Now living with a permanent ostomy, Kaylaa serves as Co-Chair Elect of the Crohn’s & Colitis Foundation’s National Council of College Leaders and plays a leading role in the Color of Gastrointestinal Illnesses initiative, advocating for equitable representation of Black women with ostomies and improved access to essential medical nutrition.